HIPAA Compliance
HIPAA Compliance

What Is Not Protected Under HIPAA?

May 28, 2025

When it comes to healthcare, privacy is a big deal, and HIPAA is often at the center of those conversations. It's like the bodyguard for patient information, ensuring that sensitive details stay protected. However, not everything falls under its protective umbrella. So, what exactly slips through the cracks? Let's dig into the nuances and find out what isn't covered by HIPAA.

Personal Health Records (PHRs) Owned by Patients

First, let's talk about Personal Health Records, or PHRs. Many people assume that any health-related information they store online is automatically covered by HIPAA, but that's not the case. If you're using a service or app to track your health data on your own, without any input from a healthcare provider, that information might not be protected under HIPAA.

PHRs are different from the Electronic Health Records (EHRs) your doctor keeps. While EHRs are subject to HIPAA regulations, PHRs are usually not. For example, if you use a fitness app to log your daily exercise, meals, or even your mood, it's likely not covered by HIPAA unless the app is offered directly by a healthcare provider. It's important to read the fine print and understand how your data is being handled by the apps you use.

  • PHRs are often managed by third-party companies, not healthcare providers.
  • These records are typically used for personal tracking and are not integrated with clinical care.
  • Users should verify the privacy policies of these services to understand how their information is protected.

Interestingly enough, even though HIPAA might not apply, these platforms still have their own privacy policies, which can offer some level of protection. So, if you're keen on safeguarding your data, make sure to review those policies carefully.

Employment Records Held by Employers

Another area where HIPAA doesn't step in is employment records. You might be surprised to learn that your employer’s records about you, even if they’re health-related, aren’t covered by HIPAA. This means details about sick leave, workplace injuries, or even a health insurance plan managed by your employer fall outside the scope of HIPAA.

Let’s say you’ve had a medical incident at work and your employer keeps a record of it. While they have an obligation to maintain confidentiality, HIPAA doesn’t govern those records. Instead, they're typically protected by other laws, such as the Americans with Disabilities Act (ADA) or the Family and Medical Leave Act (FMLA).

  • Employee health records maintained by an employer are not subject to HIPAA.
  • Other laws, such as ADA and FMLA, may provide protection instead.
  • Employers must still handle health information confidentially under these laws.

So, if you’re concerned about privacy regarding your health-related employment records, it’s wise to familiarize yourself with these other protections to ensure your information remains secure.

Education Records Covered by FERPA

Education records, particularly those in schools, colleges, or universities, are another category where HIPAA doesn’t apply. Instead, these records fall under the Family Educational Rights and Privacy Act (FERPA). This means any health-related information maintained by an educational institution is protected under FERPA, not HIPAA.

Consider a student’s immunization records or a record of visits to the school nurse. These are classic examples of health-related information that FERPA covers. Even though these records are health-related, they’re treated as part of the student’s educational records.

  • FERPA protects health information in educational settings.
  • Examples include immunization records and school nurse visits.
  • FERPA offers its own set of privacy protections separate from HIPAA.

If you’re a parent or a student, understanding FERPA can help you navigate how your educational institution handles and protects your health information.

Health Information Shared on Social Media

In this digital age, sharing personal experiences on social media is second nature to many. However, any health information you voluntarily post on platforms like Facebook, Twitter, or Instagram is not protected by HIPAA. Once you share it, it’s out there for the public to see, and HIPAA can’t reel it back in.

This doesn’t mean you shouldn’t share your health journey if you choose to—it’s just important to be mindful of the fact that this information is public. Whether it’s a post about overcoming a health challenge or sharing your latest fitness milestone, once it’s online, it’s outside the realm of HIPAA protections.

  • Health information shared on social media is not covered by HIPAA.
  • Once posted, this information becomes public.
  • Users should consider privacy settings and the public nature of social media.

If privacy is a concern, consider who’s seeing your posts and adjust your privacy settings accordingly. Remember, social media platforms have their own privacy policies, but HIPAA doesn’t cover them.

Information Collected by Wearable Devices

Wearable devices like fitness trackers and smartwatches have become common tools for monitoring personal health. They can track everything from heart rates to sleep patterns, and even stress levels. However, much like PHRs, the data collected by these devices is not generally protected by HIPAA.

These devices are usually consumer products and not provided by healthcare professionals. Therefore, the health data they collect doesn’t fall under HIPAA regulations unless the data is shared with a healthcare provider in a clinical setting.

  • Wearable devices collect health information not typically covered by HIPAA.
  • This data includes metrics like heart rate, steps taken, and sleep patterns.
  • HIPAA only applies if data is shared with a healthcare provider.

It's wise to review the privacy policies of wearable device companies to understand how your data is used and shared. This can help you make informed decisions about what data you’re comfortable tracking and sharing.

Health Information Shared in Non-Healthcare Settings

Imagine you’re discussing your latest doctor’s visit with friends over coffee. That conversation, while personal, isn’t protected by HIPAA. Health information shared in non-healthcare settings, such as a chat with friends or a post on a community forum, is outside the realm of HIPAA.

This also applies to information shared in casual settings, like a community health fair or a wellness workshop. While organizers might encourage privacy, HIPAA doesn’t govern these interactions.

  • Health discussions in social settings aren't covered by HIPAA.
  • Information shared at community events or wellness workshops is not protected.
  • HIPAA only applies to covered entities like healthcare providers and insurers.

So, while it’s great to share experiences and learn from others, keep in mind that HIPAA protections aren’t in play outside of healthcare environments.

HIPAA and Research Data

Research data is another intriguing area where HIPAA might not fully apply. In certain research settings, researchers can access health information without patient authorization, provided the data is de-identified. This means personal identifiers are removed, and the data can no longer be linked back to individual patients.

Research institutions often have their own privacy and ethical standards that guide how they handle data, but it’s worth noting that HIPAA’s application in research is limited.

  • Research data may not be covered by HIPAA if de-identified.
  • Researchers must adhere to ethical standards and privacy protocols.
  • Informed consent is often required for identifiable health information.

If you’re participating in a research study, it’s always a good idea to understand how your data will be used and what privacy protections are in place. This transparency can help ensure your comfort and trust in the process.

How Feather Helps Navigate HIPAA Complexity

Handling HIPAA compliance can feel like walking a tightrope, especially when documentation and administrative tasks pile up. That’s where Feather comes in handy. Our HIPAA-compliant AI assistant streamlines workflows, from summarizing clinical notes to drafting letters. It’s like having a personal assistant who’s always ready to tackle those tedious tasks so you can focus on patient care.

Feather is designed with privacy at its core, ensuring that your data remains secure. We don't just help with paperwork, but also automate tasks like extracting ICD-10 and CPT codes, storing sensitive documents, and even providing quick answers to medical questions. It's an all-in-one solution that respects the sensitivity of healthcare data while enhancing productivity.

And the best part? You can try Feather risk-free for 7 days to see how it can fit into your workflow without compromising on security or compliance.

Final Thoughts

Understanding what HIPAA does and doesn't cover helps us manage our health information more effectively. While HIPAA provides a strong framework for protecting patient data in healthcare settings, it’s crucial to recognize where its protections don’t apply. That's where a tool like Feather can make a difference, helping to manage the administrative side of healthcare while keeping your data secure. With Feather, you can focus less on paperwork and more on what truly matters—patient care.

Feather is a team of healthcare professionals, engineers, and AI researchers with over a decade of experience building secure, privacy-first products. With deep knowledge of HIPAA, data compliance, and clinical workflows, the team is focused on helping healthcare providers use AI safely and effectively to reduce admin burden and improve patient outcomes.

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